Saturday, January 5, 2008

Back At It!

I made it back to Michigan in record time...Praise God for okay weather and clean roads. I walked in to find Kate fast asleep. Overall, I thought she looked pretty good...she looked comfy.

My mom and I did talk with one of the attending cardiologists. We didn't hear any earth-shattering news...nothing we haven't heard before. He did feel she is making progress and is thrilled that she has remained off the vent. However...she isn't getting better at the rate they would like her to. She has encountered many set-backs...and although they seem big to us...in the whole scheme of things and the degree of her heart failure...her setbacks are expected and "normal." Her current setback is her feeding as she has had severe diarrhea. It may be caused by her meds and other issues...but most likely is due to the heart failure and lack of blood flow to her intestines. They are planning to just give her a day of rest and resume feeds again slowly and see if she can tolerate them. He said several times: "as her heart adjusts" ---he will make no predictions..but did say that hearts and kids can adjust to leaky valves and holes... and growth and time will only help her. So sound nutrition is the key and our hope for little Kate. It's just going to take time! They will continue with the IV meds until they are assured that her stomach/intestines are properly absorbing it's contents.

So...we wait. We keep on keepin' on. But I tell you...one little smile from that little adorable girl..and it's enough motivation for me! Yeah it's hard...yeah, it stinks...yeah, I hate being away from Seth and Andy...but little Kate is holding her own and givin it all she has...I can do the same for her!

I did hold her a while this afternoon..however...she is cranky. I'm guessing maybe it's her chest tube (it has significantly slowed down...but they are being cautious so that they don't have to put it back in)...plus she is receiving no pain drips...and she could still be in pain. It's hard to see her cranky and not be able to fix it.

A huge thanks to Nana for manning the ship. Although I miss my boys immensely already and can't imagine a whole week without them...I am rejuvenated to get through the week after my 3 day stint at home. We all can't thank you enough for your endless hours of devotion to Kate, hours of driving and just being wonderful! We love you Nana!

We'll have a little photo shoot tonight...maybe I can get a smile out of her!

5 comments:

Melissa said...

Time heals all! Isn't that what they say. Kate is on her own schedule, as she always is. I am glad you are back with her and that you enjoyed your time away with the boys. Praying for you all that each day gets better and that the blood flow to her intestines improve and her diarrhea slows.

Anonymous said...

We will be keeping Kate and all of you in prayer as always. Also, so sorry to hear about your friends' daughter passing away. We will certainly say a prayer for comfort and peace for them tonight. Keep on keepin' on! God bless! Many are lifting you up for strength and comfort every day.

Nancy

Melanee said...

We are praying for Hope's family and also thanking God for putting them in your path. I'm sure they are being blessed by your family as well. I hope you week is marked by more forward steps than backward ones! God is sustaining you in amazing ways and I pray for your continued strength, wisdom, and something to smile about each day (oh, and some solid, restful sleep!).

Anonymous said...

So glad that you had a rejuvinating visit with Andy and Seth this week. You sound like your strength has been renewed to be able to "keep on keeping on" with Kate's recovery. Praise God for His continuing faithfulness!
I,too, was so shocked and saddened to hear of Hope's death. Prayers for both your family and the Millingtons.
Love,
Carol





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Tammy Miller said...

GOOD EVENING! WE'RE READING "THE LAYMAN SCOOP" ALMOST EVERYDAY AND PRAYING FOR YOUR SPECIFIC NEEDS. SO GLAD TO SEE THE IMPROVEMENTS IN KATE! PRAISE GOD! WE KNOW ALL ABOUT THE ROLLER COASTER RIDE OF HAVING A SICK CHILD IN THE HOSPITAL. IT'S AMAZING HOW GOD TAKES CARE OF THE WHOLE FAMILY ONE STEP AT A TIME. OUR BOYS WENT HOME FOR A WEEK AT A TIME TOO, AND I KNOW HOW HARD IT IS ON MOMMY. I'LL PRAY FOR YOU THIS WEEK! MY MOM, GRANDMA, WAS OUR HELPER AT THE HOSPITAL AND AT HOME TOO. THANK GOD FOR YOUR NANA...WHAT A BLESSING!!! GOD WILL NEVER LEAVE YOU...KEEP ON LOOKING UP. KATE AND YOUR WHOLE FAMILY ARE SO STRONG! GOD IS DOING A MIGHTY WORK IN ALL YOUR LIVES! WE LOVE YA, AND WE CONTINUE TO PRAY EVERYDAY!