Tuesday, January 8, 2008

BIG STEPS

So...Kate is off of her IV heart medicine, Milrinone. This is a HUGE step for Kate and one that will give us a lot of direction in regards to her future and if we can orally medicate and manage her heart failure. We'll need to look for signs of increased fluid, heavy breathing and overall grumpiness. Pray..pray...pray!

And...she is going in at 2 to have her PICC line placed in the right place. Then...we can hopefully never stop her feeds again! She tolerated the feeds fine through the night until they stopped them at 8 for the procedure this afternoon. No diarrhea!! The nurse says she was a happy happy girl this morning. By the time I got there...she realized she was hungry and thirsty and is a little grumpy!

Sending lots of love!

11 comments:

Anonymous said...

Krista
Thrilled that she is off the iv heart medicine. That is a BIG STEP!
Prayers are with you today with placing the line.
LOVED the video with the pacis. We would stand on our heads to watch Kate.

Love and hugs to both of you.
Art & Reen

Anonymous said...

Hey KK--

One small step for Kate, one giant leap for the Layman 4!!!

Thanks for calling last night ... I only wish we could have shared some ice cream in person!! It was great to hear your strong voice and laughter ... keep it up!!

Love you lots,
Mira :)

Melissa said...

Praying for an uneventful PICC line placement and that she gets to eat to her hearts content! Also will continue to pray that her heart failure does not worsen without the Milrinone.

Anonymous said...

Sounds like things are looking up! Hope that the PICC line placement went well and that she will get the nourishment she needs to begin recovering and thriving. So wonderful to see her smiley face again!

Love,

Gina

Kathy said...

YEAH for getting off the IV meds!!!
I hope she a great PICC line in and it stays put!!!
I loved the video...she's behaving SO good....It always amazes me how good our little ones act (because, we'd go stir crazy if we were stuck in a hospital bed for that long)!
Take care...and I"ll check back for PICC line updates!
Kathy

klingshirn said...

Sounds like things are moving along. We will keep your family and especially Kate in our prayers. Love to hear the good news and see the great pictures.
The Klingshirns

klingshirn said...

It is good to hear the progress. Loved the video and pictures. We will keep you and especially Kate in our prayers. The Klingshirns from Ft. Recovery

Anonymous said...

Prayers and blessings being sent Kate's way. We are all rooting for her!

Many Blessings!
Kim Tinker

Anonymous said...

Krista,
I must say, Kate provided us with some good laughs with her paci entertainment! Hope everything has went well today for you and Kate. Thanks for the video.

Hugs and prayers,
Tricia H.

Anonymous said...

Thanks for the video. It is great to see Kate up and playing - she looks GREAT! Our prayer will be that she can stay off the milrinone and that the picc line placement went fine. Have a great night and keep the videos coming.

Jana Piotter (& Zach - he was waving bye bye to Kate on the video)

Anonymous said...

Krista, The pictures of Katie are wonderful. I have been thinking of you and your little girl every since I heard about your family. It was my New Year's Resolution to do something about it. Shirley gave me the scoop and Gayle has been keeping me updated. Please let me know when I can help.

You will be in our prayers. Pat