Thursday, January 10, 2008

Something ain't right!

Today was a tough day...for all of us girls. The good news is that this morning, her chest tube got pulled! But couldn't you guess...they stopped her clear liquid diet until after the tube got we walked into a grumpy baby. We waited and waited...and finally the nurse went ahead and gave her some versed and then told the docs that she was sedated. So...the doc pulls the tube and she gets popsicles and Pedialtye! Then...FINALLY...they start some formula a whopping 5 cc an hour. The plan...advance by 5cc every 4 hours till we hit the goal of 40cc an hour...then we can start giving her oral feeds. the meantime...she can have all the Pedialyte and popsicles she wants! (But of course...we've got to keep those limited or she'll drown herself!)

Kate continued to be grumpy all day long. The only time she is not crying is when she is eating a Popsicle or drinking her bottle (those take all of 3-4 minutes) Then... the only way to get her calmed down is with versed, chlorolhydrate or Ativan! I JUST HATE IT THAT IT TAKES MEDICINE TO CONSOLE MY KID....THAT'S MY JOB! But...mommy isn't even good enough for Kate right now.

Every time we came in the room today Kate was fussing and crying. It is so hard on me...cause I can't fix it. It is my hope and prayer that we will know by tomorrow when her belly is finally full if that is the entire problem. I'm beginning to think there are other issues (pain, boredom, uncomfortableness, tiredness)...but why she is inconsolable is beyond me.

So...a frustrating day. I just wish she could tell us what is wrong and what hurts!


Anonymous said...

Way to go, Krista! I salute you for being a bold and fierce advocate for Kate's well-being! The medical staff is knowledgable and skilled, but none of them knows and loves Kate the way you do. One of Hope's doctors commented to Pastor Chuck that DeLana's dedicated and expert care of Hope had extended Hope's life by several years. I know that your dedication to Kate's care is making a BIG difference for Kate. Praying that God will continue to give you wisdom and physical, spiritual, and emotional strength to continue the journey to better health for Kate. I pray that you will experience the restorative and comforting presence of God spoken of in Ps. 23.
Love and prayers at midnight,

Kathy said...

Krista,,,I'd love to have Kate as my daughter-in-law....let's make them both go to college...and tell Kate if she'll marry Isaac, I'll buy them their first house!
Kate must feel the competition between her and Isaac...that's what all the fuss is about. So, I can't wait to see what she does tomorrow!
Maybe the full belly will feel her up. Are they trying tylenoyl instead of ativan when she's a grump. Sometimes, the big drugs would have no affect on Isaac, but when we'd give just tylenoyl that would calm him down?? (I think they just get to a point where their bodies don't react anymore to the big guns!)
I hope she gets rest tonight...and you too!
I'll check on you guys tomorrow.

Anonymous said...

Krista and Nana
Glad you are there together and we know you are doing your very best to help Kate. Nana gladly helps her daughter and her grand daughter. Nothing beats family love and hugs and prayer at tough times. Glad Kate is able to eat now and hope a full tummy makes for a better day today. We will be thinking of you and praying for some smiles.
Love and hugs,
Art & Reen

Anonymous said...

Prayers, prayers, and more prayers being sent your way!

Peace and blessings,
Kim Tinker

The Portas said...

It's no fun to see your baby in discomfort, especially when Mommy Love doesn't take care of the problem. You are doing all that you can do at the moment, and that's what is important. You're such a good mama!

Praying for rest and peace and FULL BELLIES!

Anonymous said...

Hey Krista,

This is a longshot, I know, and you know Kate the had mentioned in an earlier post that she may be cutting her 2 year molars. Any chance that teething may be part of her discomfort? Just a thought since the washcloth and popsicles seem to soothe her. I'm sure that being hungry makes her really grumpy, plus all the procedures and everything else. But, just hoping it could be something less complicated this time! Love, Gina

Melissa said...

Krista, I'm sorry you are having to see Kate so miserable and that she is such an unhappy camper right now. I wonder if they would let you get her out for a wagon ride for a few minutes and see if it would perk her up? I know she has to be on a monitor, etc, but I'm sure they can make it work. Praying for you all!

Anonymous said...

Words fail me because you've heard them all. However, please know that we are with you in our thoughts and prayrs.

our love to you all,

Mary & Ray H.