Saturday, January 12, 2008

Surprise! Surprise!

Andy and I walk in to Kate's room this morning to find her playing with her toes, smiling and strong enough to sit up! We both actually held her and she seemed comforted by it. She ate her popsicles and rolled over and fell asleep! She is up to 35 cc an hour of formula. Will post the pictures after we get back from lunch.

We just don't know what to think: honestly one day I think Kate is on her death bed and then a few hours later...it appears as if she is ready to stick around for a long long while. It's so hard emotionally...because you just don't know what to mentally prepare for. I feel so bad about taking all of you along on our ride...but this is just the way it is with Miss Kate. She is still a really sick girl...but this morning she looked better and didn't seem to be in pain.

We are planning to still meet with the doctors (both the fellow and attending) as well as the Palliative Care Team (Comfort Care) on Monday. Right now...it appears early to be discussing all of this...but we the doctors seem to think that many people wait too long. We just don't know. She is back on IV diuretics...and that is still our battle. She has a very severe, complicated heart issue and we know this will take her from us...when...we just don't know!

But for now...Kate appears happy and ready to fight the next fight! Go Kate Go!

18 comments:

Anonymous said...

We're so happy your little princess is feeling better this morning! All of your friends and supporters are willingly on the roller coaster ride with you. We continue to pray for a miracle, but we also pray "Thy will be done", whatever that may be.

Lou and Shirlie

Kathy said...

OH...I'm glad she found her toes and is sitting up!!! YEAH KATE!!!
She heard that Isaac had a good day yesterday...and felt if was ok to tone down the drama!
You're so BRAVE Krista...this roller coaster is no fun at all!! Stay strong...enjoy Miss Kate this weekend and tell her to straighten up or she's grounded!
Kathy

Anonymous said...

Glad to hear that Kate is feeling better today. What a roller coaster of emotions for you guys! She sure does keep you guessing! Enjoy your time this weekend with Andy and Kate. Love, Gina

Sheila G. said...

Andy, Krista, Kate,

Hang in there! All our prayer chains are working for you guys!!

We're glad to hear some "sunshine" news today!!

Love,

Sheila

Anonymous said...

I have been praying for little Kate since we met her when my daughter was roommates with her at Mott's Hospital back in December. We are happy to hear that Kate is feeling better this morning. She will continue to be in our prayers!

The Portas said...

Please don't ever feel bad for sharing your rollercoasater ride with us. This journey IS a rollercoaster, that's the truth, and we're here to support you through the ups and downs.

It's so good that today is a good day. Enjoy it! You are doing such a great job and you are sooo strong. Thanks for continuing to share Kate's story with us.

Melanee said...

I'm thrilled to hear about the good report today. What a blessing that you got to hold her and she wasn't fussy! You are helping all of us recognize those little blessings in each day - so thank you for sharing.
Praying Continually,
Mel

Anonymous said...

Krista and Andy
Gayle and I are together this weekend and both of us are thinking of your family and praying for all of you. Glad to hear that Kate is doing good today and you can enjoy the time with her.
Love and hugs,
Reen

Anonymous said...

What an answer to prayer. We will continue to pray and are thrilled with the good day she is having. You guys need to have that in the rollercoaster you are going thru. We pray that she will be able to tolerate her feedings and be able to continue to smile and be happy for awhile. Hang in there.
Sheri, Crystal, Ryan and Kevin

Anonymous said...

Thank you for sharing your emotions with us--it helps us to better understand and pray with detail and clarity. We know this is a fragile road and we find our strength from the walk with you!:) You paint such a clear picture of life with Kate and I can visualize her smiling and grasping those toes!:) Hugs!
Donna

Anonymous said...

So happy to hear good news today. Go Kate Go! Right on! We went to church today and prayed especially for Kate. You are all never far from our thoughts.

Nancy

Anonymous said...

Bless your hearts...no need to be sorry about the roller coaster ride. We all are sorry that you have to be on it. We just have to trust our loving God that He will provide for Kate and each one of your family just what is needed moment by moment, hour by hour, day by day. . .
Love & Best Wishes,
Mary & Ray H.

Anonymous said...

So glad to hear that Kate had a good day today! Don't feel bad about sharing the roller coaster ride with us, we are more than happy to share Kate's story. I wrote to all my small group members for prayer this morning. We will continue to pray for her and for both of you. Trust God, He knows what He is doing.
Linda Creek

Melissa said...

I'm so glad that Kate showed you how strong she is, yet again. We continue to pray and hope that Kate can prove to everyone how great she is and how strong she can fight!

Anonymous said...

Thank goodness for some good news from Kate's corner. We are all so glad to be here to recieve your updates and to be able to pray as needed for Kate's improved health. You have a wonderful support group, both friends, family, and complete strangers. We are here to provide the support and prayer you all need, so don't ever feel bad for sharing. We are all here for you guys!!

Many blessings and continued prayers!!

Kim Tinker

Vanessa said...

I am so happy to hear she is doing well. I know things have been touch and go. I pray that Kate continues on this road.

Anonymous said...

Though this roller coaster ride is terrible for you, don't ever feel you need to apologize for taking us along. We love you all and this is a way we can be a part of your family in spite of not being with you in person. Thank you for sharing your deepest emotions with us. It makes us feel even closer to you and helps us to know what we need to focus on when we ask for God's help for you. We rejoyce that this has been a "better" day and that you have many more of them. Linda D.

Anonymous said...

Krista & Andy,

We continue to keep you in our prayers. We are glad to hear the report today and to hear that Kate was having a good day. We pray that your faith carries and continues to sustain you on this "roller coaster ride"! God bless you and keep you,

Kurt & Carrie